Advocating for your child at different stages of life involves engaging with caregivers, educators, and family members while explaining their dual challenges:
Early Intervention Services (Ages 0 to 5):
What is Early Intervention? Early Intervention Services by CDC
Early intervention refers to services and supports available to babies and young children with developmental delays and disabilities and their families.
These services, such as speech therapy, physical therapy, etc., can significantly impact a child’s ability to learn new skills and overcome challenges, enhancing success in school and life.
Programs are available in every state and territory.
Family TIES: Massachusetts Family TIES
Provides information, referral services, emotional support, and training to parents of children with special needs.
Offers a complete listing of Early Intervention Programs in MA.
Call 617-624-5563 for assistance outside of Massachusetts.
National Down Syndrome Congress (NDSC): NDSC Programs & Resources
Provides support and information for individuals touched by Down syndrome, offering programs for families and professionals.
Call 1-800-232-NDSC (6372) for assistance Monday through Friday from 9:00 AM to 5:30 PM Eastern Time.
Offers a list of Down Syndrome Clinics by state — http://dsc2u.org/
National Down Syndrome Society (NDSS): National Down Syndrome Society
Empowers individuals with Down syndrome and their families through policy change, resource provision, community engagement, and public perception shifting.
Resources for Healthcare Providers:
In emergencies, provide a quick resource outlining DS+HD to healthcare providers.
Include essential information about the conditions and potential complications to aid in the child's care.
By utilizing these resources and engaging with relevant organizations, caregivers, educators, and healthcare providers can better support children with dual challenges like DS+HD at various stages of their lives.