My name is Liz Crawford, and this is the story of my son, Malachi Hofer, and his journey with Hirshsprung’s disease.

Born on November 8, 2008, after a lengthy delivery, our dear son, had finally arrived at 10.5 pounds and 23 inches. Strong and hearty with the most perfect hands, Malachi looked healthy and alert. It was not until later that same day I felt like something was amiss.

Suddenly, my son was very tired and uninterested in feeding. The nurses assured me that this was normal as he too had been through an ordeal. However, I could not shake that horrible feeling that there was something else happening. Call it “mothers intuition”, but I remember the moment I knew for sure; I saw it in his eyes. This is where I start to sound crazy but have resigned myself to embrace “crazy”, as it was the only thing that kept me sane.