REACH IS SOCIAL! FOLLOW, LIKE, SHARE US & SO MUCH MORE…
Support begins with a strong community; It's easier when you're not alone. Join our online communities to find HD support, make connections, share information, or whatever you are looking for!
REACH IS SOCIAL! FOLLOW, LIKE, SHARE US & SO MUCH MORE…
Support begins with a strong community; It's easier when you're not alone. Join our online communities to find HD support, make connections, share information, or whatever you are looking for!
Become a REACH Educational Brand Ambassador! Help us spread the word about Hirschsprung’s Disease and what we all can do to help. Fill out the form below to apply!
HD PASSPORT
We heard you! It’s a very overwhelming feeling having to explain Hirschsprung’s disease or your child’s history to medical professionals every time there is cause for concern. Tired of having to re-introduce Hirschsprung’s disease? We have something that can help!
REACH Presents the Hirschsprung’s Disease Patient Passport
Fill out the information and print it. Keep it with you for every time you require medical assistance.
As you may know, enterocolitis isn’t easily diagnosed and often dismissed as something less severe—The Patient Passport will provide information and links to quickly update and inform medical staff of the condition allowing for better and more accurate care.
Reach Blog
Learn about how Hirschsprung Disease has affected people around the world. Our blog features raw
stories of hurdles, strength and hope from people living with HD or family members who support them.
Follow Roo's Journey
Reach board member Liz Crawford shares how she navigates through her son Malachi's life with Hirschsprung Disease through a blog she created after Malachi was diagnosed. Please enjoy reading Liz's caring words through her loving motherly voice with a pinch of humor, which as HD parents know is always the best medicine!
do you have a question? ask our doctors!
Use this form to contact our two board member doctors Dr. Allan Goldstein, from Boston Massachusetts General Hospital & Dr. Jacob Langer, from Sick Kids Hospital in Toronto Canada.
If you have questions or concerns,
you can reach us at reachirschsprungs@gmail.com
Connecting With Online Communities: Social Pages
Use these pages to grow your social network and connect with others in the Hirschsprung’s Community. You can also read about fellow HD parents who are blogging about Hirschsprung’s!
Connecting With Online Communities: Social Pages
Use these pages to grow your social network and connect with others in the Hirschsprung’s Community. You can also read about fellow HD parents who are blogging about Hirschsprung’s!
Click Each Heading To Visit The Websites
HIRSCHSPRUNG’S COMMUNITY
A forum for anyone with a family member living with Hirschsprung’s disease. A place to connect, dialogue, and share stories with others who understand.
HIRSCHSPRUNG’S DISEASE FAMILY SUPPORT GROUP
A support group focused on encouraging families to share their stories, tips and tricks from living with Hirschsprung’s disease.
LIFE WITH HD
A hub for families living with HD to connect and learn about what to expect for alifewithHD.
LYNN’S LAW
Lynn’s Law aims to change that with four simple measures: a hook near the toilet (not on the door which is too far away), a sink, a medical waste disposal box for used syringes, and a shelf. That’s it. Just a few simple things can give someone with a medical condition the simple freedom most everyone takes for granted: the bathroom is a private place!
Stay connected.
Stay connected.
We have a vibrant and active online community of people like you who are living with Hirschsprung's Disease. They look forward to hearing your story and sharing theirs.
Helpful Links
These are pages recommended by our board that you might find good to use as resources.
Helpful Links
These are pages recommended by our board that you might find good to use as resources.
AGMD
The Association of Gastrointestinal Motility Disorders is a non-profit initiative aimed at helping individuals with digestive motility disorders.
IFFGD
The International Foundation for Functional Gastrointestinal Disorders focuses on informing, assisting and supporting people affected by gastrointestinal disorders.
PULL-THRU NETWORK
The Pull-thru Network provides information, support and advocacy for families living with congenital anorectal, colorectal or urogenital disorders.
APSA
The American Pediatric Surgical Association’s three part article about Hirschsprung’s disease and the various surgical procedures children may undergo.