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February 28th we celebrate the raising of awareness while generating change for the 300 million people worldwide living with a rare disease, their families and carers.


Play the #LightUpForRare video on your computer or smart TV to fill your room with vibrant Rare Disease Day colours.

By Sharing Your Colours and shining a beacon from your home, office or your town, you are participating in awareness-raising and showing your solidarity. Collectively, we aim to change and improve the lives of 300 million people worldwide.

Though Rare Disease Day is community-led, everyone, including individuals, families, caregivers, healthcare professionals, and the general public can participate in raising awareness and taking action today for this vulnerable population who require immediate and urgent attention.

Be part of the change this Rare Disease Day!