TAKING CARE OF YOURSELF/FAMILY

Support Groups

  1. REACHHD Facebook Group

  2. Facebook Group for Parents of Children with Both Down Syndrome and Hirschsprung's Disease

  3. Parent Groups - Down Syndrome Resource Foundation (DSRF)

    • Parents of individuals with a dual diagnosis of Down syndrome and Autism Spectrum Disorder (DS-ASD) meet every other week on Zoom to learn and connect. Topics include understanding the profile of DS-ASD, setting goals at home and school, supporting language and communication, sensory differences, behavior, and emotional regulation. There will also be ample time for parents to share personal experiences and connect in a supportive online environment.

    • DSRF Parent Groups

  4. Local Support Groups - Down's Syndrome Association

    • A large network of parent-led support groups covering England, Wales, and Northern Ireland. These groups are independently run by parents for their local communities and are affiliated with the Down’s Syndrome Association. They aim to provide a local network offering friendship, support, social events, and other activities. For details of the groups, please email or call:

      • Helpline: 0333 1212300 (10am-4pm)

      • Email: info@downs-syndrome.org.uk

    • Downs Syndrome Association Support Groups

  5. Local Support | National Down Syndrome Society (NDSS)

    • NDSS works with over 250 local Down syndrome organizations across the country to provide various benefits that help serve the Down syndrome community in their local areas. These local partners work on behalf of individuals with Down syndrome, their families, and the professionals involved in their overall welfare.

    • NDSS Local Support